Good luck Rolfe. We can't diminish the pain you are going through. It's the next best thing to childbirth, except you don't have to put the delivery through college. Now find out what causes your stones and never eat that food ever again.
Update: Therapy number 1 (of 8) went pretty well. The whole session took almost 7 hours, like a long plane ride while sitting on the tarmac. There was one very long moment that I had uncontrollable shivers and shakes I couldn't even hold a pen. But nursing staff was great and stopped the med for a bit, injected something to calm me, let me rest a while and started the drip again at a lower dose. Later she inched it back up and I tolerated it just fine. It's poison I tell ya.
I feel good tonight (they also slip in steroids for energy and anti-nausea fluids). It's the next few days where I'll get the queasies and then the fatigue and with hair on my pillow.
There was an older woman getting treatment when I came in this morning. She actually looked elegant in her coffee colored kerchief. She smiled at me, and then I spent the next hour or so scrutinizing her smile . . . .what was she saying? "HA, a newbie . . . .she won't have those pretty curls for long." Or was it a friendly, join the club? I may never know.
I did see the doc briefly. And now I know it's stage 3 lymphoma, meaning it's above and below the diaphragm. An infected lymph node (or more? Not sure yet) was found with the PET scan in the right upper back/shoulder (no wonder I couldn't swing a golf club due to the stunning pain). I see the doc with Paul in about two weeks for more explanation of diagnosis.
So one down seven to go. And it's not a white light at the end of a tunnel I'm looking for, because I know, if you see the white light, you don't want to go there.
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